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https://hdl.handle.net/10316/36315
Título: | Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe? | Autor: | Budin-Ljøsne, Isabelle Mascalzoni, Deborah Soini, Sirpa Machado, Helena Kaye, Jane Bentzen, Heidi Beate Rial-Sebbag, Emmanuelle D'Abramo, Flavio Witt, Michał Schamps, Geneviève Katić, Višnja Krajnovic, Dusanca Harris, Jennifer R. |
Data: | Jun-2016 | Editora: | Mary Ann Liebert | Projeto: | info:eu-repo/grantAgreement/EC/FP7/261433/EU info:eu-repo/grantAgreement/EC/FP7/305444/EU info:eu-repo/grantAgreement/EC/FP7/313010/EU BIOTEK2021/238999/O30 info:eu-repo/grantAgreement/EC/H2020/648608/EU |
Título da revista, periódico, livro ou evento: | Biopreservation and Biobanking | Volume: | 14 | Número: | 3 | Resumo: | There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives) regarding challenges to the feedback of individual genetic results to research participants in Europe and potential strategies to address these challenges. | URI: | https://hdl.handle.net/10316/36315 | ISSN: | 1947-5535 1947-5543 |
DOI: | 10.1089/bio.2015.0115 10.1089/bio.2015.0115 |
Direitos: | openAccess |
Aparece nas coleções: | I&D CES - Artigos em Revistas Internacionais |
Ficheiros deste registo:
Ficheiro | Descrição | Tamanho | Formato | |
---|---|---|---|---|
Feedback of Individual Genetic Results to Research Participants Is It Feasible in Europe.pdf | 120.81 kB | Adobe PDF | Ver/Abrir |
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