Please use this identifier to cite or link to this item: https://hdl.handle.net/10316/36315
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dc.contributor.authorBudin-Ljøsne, Isabelle-
dc.contributor.authorMascalzoni, Deborah-
dc.contributor.authorSoini, Sirpa-
dc.contributor.authorMachado, Helena-
dc.contributor.authorKaye, Jane-
dc.contributor.authorBentzen, Heidi Beate-
dc.contributor.authorRial-Sebbag, Emmanuelle-
dc.contributor.authorD'Abramo, Flavio-
dc.contributor.authorWitt, Michał-
dc.contributor.authorSchamps, Geneviève-
dc.contributor.authorKatić, Višnja-
dc.contributor.authorKrajnovic, Dusanca-
dc.contributor.authorHarris, Jennifer R.-
dc.date.accessioned2017-01-20T17:39:39Z-
dc.date.available2017-01-20T17:39:39Z-
dc.date.issued2016-06-
dc.identifier.issn1947-5535por
dc.identifier.issn1947-5543por
dc.identifier.urihttps://hdl.handle.net/10316/36315-
dc.description.abstractThere is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives) regarding challenges to the feedback of individual genetic results to research participants in Europe and potential strategies to address these challenges.por
dc.language.isoengpor
dc.publisherMary Ann Liebertpor
dc.relationinfo:eu-repo/grantAgreement/EC/FP7/261433/EUpor
dc.relationinfo:eu-repo/grantAgreement/EC/FP7/305444/EUpor
dc.relationinfo:eu-repo/grantAgreement/EC/FP7/313010/EUpor
dc.relationBIOTEK2021/238999/O30por
dc.relationinfo:eu-repo/grantAgreement/EC/H2020/648608/EUpor
dc.rightsopenAccesspor
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/por
dc.titleFeedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?por
dc.typearticle-
degois.publication.firstPage241por
degois.publication.lastPage248por
degois.publication.issue3por
degois.publication.titleBiopreservation and Biobankingpor
dc.relation.publisherversionhttp://online.liebertpub.com/doi/abs/10.1089/bio.2015.0115por
dc.peerreviewedyespor
dc.identifier.doi10.1089/bio.2015.0115por
dc.identifier.doi10.1089/bio.2015.0115-
degois.publication.volume14por
item.openairetypearticle-
item.fulltextCom Texto completo-
item.languageiso639-1en-
item.grantfulltextopen-
item.cerifentitytypePublications-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
crisitem.author.orcid0000-0001-8554-7619-
Appears in Collections:I&D CES - Artigos em Revistas Internacionais
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