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Title: The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents
Authors: Silva, Neuza 
Carona, Carlos 
Crespo, Carla 
Bullinger, Monika 
Canavarro, Maria Cristina 
Keywords: Asthma-specific assessment; Children and adolescents; DISABKIDS questionnaires; Health-related quality of life; Patient-reported and parent-reported outcomes; Psychometrics
Issue Date: 2014
Citation: Silva, N., Carona, C., Crespo, C., Bullinger, M., & Canavarro, M. C. (2014). The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents. Journal of Asthma, 51(6), 645-651. doi:10.3109/02770903.2014.885042
Project: FCT (SFRH/BD/69885/2010) 
Serial title, monograph or event: The Journal of Asthma: Official Journal of the Association for the Care of Asthma
Volume: 51
Issue: 6
Abstract: Introduction. The KIDSCREEN and DISABKIDS questionnaires constitute a modular system for assessing the health-related quality of life (HrQoL) of children/adolescents. Objective: This study was aimed at examining the factorial structure of the Portuguese patient- and parent-reported versions of the DISABKIDS-Asthma Module (AsM) and its invariance across age groups and informants, as well as to examine their reliability and construct validity. Method. The sample included 140 children/adolescents aged 8-18 years, who were diagnosed with asthma, and one of their parents. Both family members assessed HrQoL at the generic (KIDSCREEN-10), chronic-generic (DISABKIDS-12) and asthma-specific (DISABKIDS-AsM) levels. Asthma severity was classified by physicians using Global Initiative for Asthma (GINA) guidelines. Results. Confirmatory factor analysis attested the factorial validity of the correlated two-factor model of the DISABKIDS-AsM, but the low average variance extracted by each factor (Impact and Worry) suggested that a one-factor structure would better fit the Portuguese data. The one-factor model had an acceptable fit (χ2/df = 1.97; comparative fit index = 0.94; root mean square error of approximation = 0.08) and was invariant between age groups (children vs. adolescents) and informants (patient-reports vs. parent-reports). The resulting global index of asthma-specific HrQoL presented good reliability and convergent validity with the generic and chronic-generic measures. The DISABKIDS instruments also detected significant differences in HrQoL regarding asthma severity groups. Conclusion. The DISABKIDS-AsM may be regarded as a specific one-dimensional questionnaire, which, besides suiting pediatric patients in different developmental stages and enabling reliable proxy-reports, is sensitive to asthma clinical characteristics and is cross-culturally comparable, thus representing a valuable tool for assessing asthma-specific HrQoL as a primary health outcome in clinical practice and research contexts.
DOI: 10.3109/02770903.2014.885042
Rights: openAccess
Appears in Collections:FPCEUC - Artigos em Revistas Internacionais

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