Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/45402
DC Field | Value | Language |
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dc.contributor.author | Quitmann, Julia | - |
dc.contributor.author | Rohenkohl, Anja | - |
dc.contributor.author | Sommer, Rachel | - |
dc.contributor.author | Bullinger, Monika | - |
dc.contributor.author | Silva, Neuza | - |
dc.date.accessioned | 2017-12-22T13:00:24Z | - |
dc.date.available | 2017-12-22T13:00:24Z | - |
dc.date.issued | 2016 | - |
dc.identifier.citation | Quitmann, J., Rohenkohl, A., Sommer, R., Bullinger, M., & Silva, N. (2016). Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: Do family and social relationships matter? Health and Quality of Life Outcomes, 14, 150. doi:10.1186/s12955-016-0553-0 | por |
dc.identifier.uri | https://hdl.handle.net/10316/45402 | - |
dc.description.abstract | Background: In the context of health-related quality of life (HrQoL) assessment in pediatric short stature, the present study aimed to examine the levels of agreement/disagreement between parents’ and children’s reports of generic and condition-specific HrQoL, and to identify socio-demographic, clinical and psychosocial variables associated with the extent and direction of parent-child discrepancies. Methods: This study was part of the retest phase of the QoLISSY project, which was a multicenter study conducted simultaneously in France, Germany, Spain, Sweden and UK. The sample comprised 137 dyads of children/adolescents between 8 and 18 years of age, diagnosed with growth hormone deficiency (GHD) or idiopathic short stature (ISS), and one of their parents. The participants completed child- and parent-reported questionnaires on generic (KIDSCREEN-10 Index) and condition-specific HrQoL (QoLISSY Core Module). Children/adolescents also reported on social support (Oslo 3-items Social Support Scale) and parents assessed the parent-child relationships (Parental Role subscale of the Social Adjustment Scale) and burden of short stature on parents (QoLISSY- additional module). Results: The parent-child agreement on reported HrQoL was strong (intraclass correlation coefficients between .59 and .80). The rates of parent-child discrepancies were 61.5 % for generic and 35.2 % for condition-specific HrQoL, with the parents being more prone to report lower generic (42.3 %) and condition-specific HrQoL (23.7 %) than their children. The extent of discrepancies was better explained by family and social relationships than by clinical and socio-demographic variables: poorer parent-child relationships and better children’s social support were associated with larger discrepancies in generic HrQoL, while more parental burden was associated with larger discrepancies in condition-specific HrQoL reports. Regarding the direction of discrepancies, higher parental burden was significantly associated with parents’ underrating, and better children’s social support was significantly associated with parents’ overrating of condition-specific HrQoL. Conclusions: Routine assessment of pediatric HrQoL in healthcare and research contexts should include child- and parent-reported data as complementary sources of information, and also consider the family and social context. | por |
dc.description.sponsorship | This study is part of the “Quality of Life in Short Stature Youth” (QoLISSY) project, a joint initiative between the University Medical Centre Hamburg-Eppendorf and ©Pfizer Limited. | por |
dc.language.iso | eng | por |
dc.rights | openAccess | por |
dc.subject | Quality of Life | por |
dc.subject | Extent and direction of parent-child discrepancies | por |
dc.subject | Parent-child dyadic approach | por |
dc.subject | Parental burden | por |
dc.subject | Growth hormone deficiency | por |
dc.subject | Idiopathic short stature | por |
dc.subject | Social support | por |
dc.title | Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter? | por |
dc.type | article | por |
degois.publication.firstPage | 150 | por |
degois.publication.issue | 1 | por |
degois.publication.title | Health and Quality of Life Outcomes | por |
dc.peerreviewed | yes | por |
dc.identifier.doi | 10.1186/s12955-016-0553-0 | - |
degois.publication.volume | 14 | por |
item.fulltext | Com Texto completo | - |
item.openairecristype | http://purl.org/coar/resource_type/c_18cf | - |
item.grantfulltext | open | - |
item.languageiso639-1 | en | - |
item.openairetype | article | - |
item.cerifentitytype | Publications | - |
crisitem.author.researchunit | Center for Research in Neuropsychology and Cognitive Behavioral Intervention (CINEICC) | - |
crisitem.author.parentresearchunit | Faculty of Psychology and Educational Sciences | - |
crisitem.author.orcid | 0000-0003-4110-9961 | - |
Appears in Collections: | FPCEUC - Artigos em Revistas Internacionais |
Files in This Item:
File | Description | Size | Format | |
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Explaining parent-child (dis)agreement in HrQoL.pdf | 531.27 kB | Adobe PDF | View/Open |
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