Please use this identifier to cite or link to this item: https://hdl.handle.net/10316/101625
DC FieldValueLanguage
dc.contributor.authorPlaza, Gonçalo-
dc.contributor.authorBarros, Luísa-
dc.contributor.authorCovinhas, Ana-
dc.contributor.authorCarona, Carlos-
dc.contributor.authorCarona, Carlos-
dc.date.accessioned2022-09-05T09:21:25Z-
dc.date.available2022-09-05T09:21:25Z-
dc.date.issued2019-
dc.identifier.issn24903639pt
dc.identifier.issn24903671pt
dc.identifier.urihttps://hdl.handle.net/10316/101625-
dc.description.abstractThis study aimed to semantically validate the Portuguese versions of the diabetes module of a pediatric health-related quality of life assessment instrument – DISABKIDS-DM – and to preliminarily explore their main psychometric properties. Materials and Methods − Two samples of children (8-12 yo) and adolescents (13-18 yo) with Type 1 diabetes and their caregivers participated in the semantic validation (n=36) and in the pilot study (n=160) and filled out the DISABKIDS-DM, the semantic validation questionnaires and the Strengths and Difficulties Questionnaire. Using classical statistical validation procedures, the reliability, interrater consistency, and construct, discriminant, convergent and divergent validity were analyzed. Results − The findings support the relevance, comprehensibility and adequacy of the Portuguese versions. Both the self and proxy versions exhibited adequate levels of reliability; interrater consistency; and convergent, divergent and discriminant validity. The instrument differentiated between HbA1c groups, with children/adolescents with lower levels reporting better HRQoL, and between groups with and without comorbidity, with participants with other chronic diseases showing worse HRQoL. The instrument did not discriminate between the gender and time of diagnosis categories. Children and adolescents tended to report higher levels of HRQoL than their parents. Conclusion − These results reinforce the importance of cross-cultural validation procedures to ensure the equivalence of pediatric HRQoL measures, particularly in the context of diabetes-specific instruments. More research is needed, with a larger and more diverse sample, to study the factorial structure. The use of the questionnaires should be encouraged in both pediatric clinical settings and research.pt
dc.language.isoengpt
dc.relationPortuguese Diabetes Association (APDP)pt
dc.rightsopenAccesspt
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/pt
dc.subjectChildren and Adolescentspt
dc.subjectDiabetespt
dc.subjectHealth-Related Quality of Lifept
dc.subjectCross-Cultural Adaptationpt
dc.subjectDISABKIDSpt
dc.titleAssessing Paediatric Hrqol in Diabetes: Semantic and Pilot Validation Study of the Portuguese Versions of DISABKIDS-DM ConditionSpecific Modulept
dc.typearticle-
degois.publication.firstPage77pt
degois.publication.lastPage92pt
degois.publication.issue2pt
degois.publication.titleCentral European Journal of Paediatricspt
dc.peerreviewedyespt
dc.identifier.doi10.5457/p2005-114.236pt
degois.publication.volume15pt
dc.date.embargo2019-01-01*
uc.date.periodoEmbargo0pt
item.grantfulltextopen-
item.fulltextCom Texto completo-
item.openairetypearticle-
item.languageiso639-1en-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.cerifentitytypePublications-
crisitem.author.researchunitCenter for Research in Neuropsychology and Cognitive Behavioral Intervention-
crisitem.author.orcid0000-0002-3605-3513-
Appears in Collections:I&D CINEICC - Artigos em Revistas Internacionais
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