Please use this identifier to cite or link to this item: https://hdl.handle.net/10316/45419
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dc.contributor.authorBullinger, Monika-
dc.contributor.authorQuitmann, Julia-
dc.contributor.authorSilva, Neuza-
dc.contributor.authorRohenkohl, Anja-
dc.contributor.authorChaplin, John E.-
dc.contributor.authorDeBusk, Kendra-
dc.contributor.authorMimoun, Emmanuelle-
dc.contributor.authorFeigerlova, Eva-
dc.contributor.authorHerdman, Michael-
dc.contributor.authorSanz, Dolores-
dc.contributor.authorWollmann, Hartmut-
dc.contributor.authorPleil, Andreas-
dc.contributor.authorPower, Michael-
dc.date.accessioned2017-12-22T21:31:34Z-
dc.date.available2017-12-22T21:31:34Z-
dc.date.issued2014-
dc.identifier.citationBullinger, M., Quitmann, J., Silva, N., Rohenkohl, A., Chaplin, J. E., DeBusk, K., Mimoun, E., Feigerlova, E., Herdman, M., Sanz, D., Wollmann, H., Pleil, A., & Power, M. (2014). Cross-cultural equivalence of the patient- and parent-reported Quality of Life in Short Stature Youth (QoLISSY) Questionnaire. Hormone Research in Paediatrics, 82(1), 18-30. doi:10.1159/000358832por
dc.identifier.urihttps://hdl.handle.net/10316/45419-
dc.description.abstractBackground: Testing cross-cultural equivalence of Patient Reported Outcomes requires sufficiently large samples per country, which is difficult to achieve in rare endocrine paediatric conditions. We describe a novel approach to cross-cultural testing of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in five countries by sequentially Taking-One-Country-Out (TOCO) from the total sample and iteratively comparing the resulting psychometric performance. Methods: Development of the QoLISSY proceeded from focus group discussions over pilot testing to field testing in 268 short statured patients and parents. In exploring cross-cultural equivalence the iterative TOCO technique was used to examine and compare validity, reliability and convergence of QoLISSY patient- and parent-ratings in the field test data set, and to predict QoLISSY scores from clinical, socio-demographic and psychosocial variables. Results: Validity and reliability indicators were satisfactory for each sample after iteratively omitting one country. Comparisons with the total sample revealed cross-cultural equivalence in internal consistency and construct validity for patients and parents, high inter-rater agreement and a substantial proportion of QoLISSY variance explained by predictors. Conclusion: The TOCO technique is a powerful method to overcome problems of country specific testing of PRO instruments. It provides an empirical support to QoLISSY´s cross-cultural equivalence and is recommended for future research.por
dc.description.sponsorshipThis study was funded by Pfizer Limited. Andreas Pleil is at the time of this study full-time employee of Pfizer Inc; Hartmut Wollmann was a full-time employee of Pfizer Inc. No authors received compensation for their contributions to the manuscript.por
dc.language.isoengpor
dc.rightsopenAccesspor
dc.subjectHealth related quality of lifepor
dc.subjectShort staturepor
dc.subjectGrowth hormone deficiencypor
dc.subjectIdiopathic short staturepor
dc.subjectPatient and parent assessmentpor
dc.subjectOutcome researchpor
dc.titleCross-Cultural Equivalence of the Patient- and Parent-Reported Quality of Life in Short Stature Youth (QoLISSY) Questionnairepor
dc.typearticlepor
degois.publication.firstPage18por
degois.publication.lastPage30por
degois.publication.issue1por
degois.publication.titleHormone Research in Paediatricspor
dc.relation.publisherversionhttps://www.karger.com/Article/Abstract/358832por
dc.peerreviewedyespor
dc.identifier.doi10.1159/000358832-
degois.publication.volume82por
item.openairetypearticle-
item.languageiso639-1en-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.cerifentitytypePublications-
item.grantfulltextopen-
item.fulltextCom Texto completo-
crisitem.author.researchunitCenter for Research in Neuropsychology and Cognitive Behavioral Intervention-
crisitem.author.orcid0000-0003-4110-9961-
Appears in Collections:FPCEUC - Artigos em Revistas Internacionais
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